A couple of UK-based websites offer information and advice on lichen sclerosus.

  • The Lichen Sclerosus Guide is an award-winning resource for people living with vulval lichen sclerosus (LS). It was co-produced by patients, specialist health professionals, and researchers. It contains evidence-based information as well as useful practical tips based on patient and health professional experiences. It includes tools such as template treatment plans to aid your consultations, a symptoms checklist, and videos to explain LS, how to self-check, and how to use treatment.

Resources

The BSSVD in collaboration with Manchester University have produced a leaflet which shows how to perform a vulval self-examination to check for abnormalities. This leaflet is aimed at people who are at an increased risk of vulval cancer due to age or certain medical conditions, including lichen sclerosus: